Mesothelioma Help Cancer News

Belluck Helps Inaugurate New Maritime President

• Nancy Meredith
• Veterans

Joe Belluck, a member of the State University of New York Board of Trustees, officially participated in the inauguration of Dr. Michael Alfultis, Rear Admiral in the United State Maritime Service, as the eleventh president of the Maritime College of the State University of New York (SUNY). The ceremony also celebrated the College’s 140th anniversary.

Dr. Alfultis graduated with honors from the Coast Guard Academy in 1982. Following graduation, he was assigned to Guam and served as an operations officer aboard the U.S. Coast Guard Cutter Basswood. Alfultis then went on to earn advanced degrees in Oceanography from the University of Washington (M.S., 1987) and the University of Rhode Island (Ph.D., 1997) before returning to the Academy in 1989 as a member of its science department faculty.

Alfultis earned the Academy’s Distinguished Faculty Award in in 2009 and retired from the Coast Guard in 2010, a year in which he also began his tenure as the chief administrative officer of the UCONN Avery Point regional campus.

The appointment of Alfultis to the Maritime College presidency took place on June 17, 2014, and he began presidential duties on July 14.

The November 7 ceremony was attended by a full procession of cadets as well as prestigious guests who included Captain Paul “Chip” Jaenichen, the Administrator of the United States Maritime Administration, Captain Timothy Ferrie, President of the Marine Society of the City of New York, and SUNY Chancellor Nancy L. Zimpher.

Belluck helped install the new President of the Maritime College by helping present Dr. Alfultis with his presidential medal. Addressing the attendees, Belluck told them that he was honored to be at the inauguration both because of the wonderful history of the Maritime College and because he had represented many alumni of the school who were exposed to asbestos aboard merchant marine ships.

The Maritime College of the State University of New York was founded in 1874 and is the nation’s oldest and largest maritime academy. Its graduates, many of whom are marine engineers, have assumed leadership positions throughout the maritime industry. Located in Fort Schuyler, at the intersection of the East River and Long Island Sound, the college trains many of the nation’s merchant mariners.

The Maritime College has historically had training ships where cadets and students learned how to operate and maintain ships. These ships have included the Empire State II, Empire State III and Empire State IV. Cadets and students typically participate in a Summer Sea Term to learn the fundamentals of marine operation and maintenance.

Among the first year goals of Dr. Alfultis is replacing the 50-year-old training ship Empire State IV. He also wants to increase retention and graduation rates and increase campus diversity by appealing to more out-of-state students and veterans.

Belluck & Fox, LLP has represented many merchant marines who sailed on the Empire State ships and then went on to careers at numerous shipping companies. Many of these merchant mariners were exposed to asbestos in the engine and boiler room of ships – particularly while maintaining pumps, valves, boilers, turbines and other equipment. Today, the Maritime College is a leader in environmental protection.

If you sailed in the merchant marines and have been diagnosed with mesothelioma or lung cancer, contact Belluck & Fox, LLP for a free consultation. They are very familiar with the maritime industry and can help protect you and your family.

Veteran Access to Non-VA Centers for Specialty Care

• Nancy Meredith
• Veterans

Veterans with mesothelioma who receive health benefits through the U.S. Department of Veterans Affairs (VA) are free to receive health care at any VA facility nationwide, providing them with access to mesothelioma specialty services that aren’t available at their local VA hospital.

But this can involve lengthy travel and time spent away from home, conditions that are far from comfortable for patients with painful and incurable cancer.

Fortunately, a rule change to the Veterans Access, Choice, and Accountability Act of 2014 (Choice Act) could allow veterans to seek mesothelioma care outside of the VA network and closer to home.

The Choice Act was President Obama’s and Congress’s response to a scandal that broke last year over long wait time and systemic mismanagement within the VA health system. One of its major provisions is the Veterans Choice Program, which provides veterans access to private health care facilities if they cannot receive an appointment with the VA within 30 days or live more than 40 miles from a VA health facility.

As it was originally worded, the Choice Program allowed veterans access to private (non-VA) local health care if they lived more than 40 miles from a VA health facility “as the crow flies.” A rule change in April changed the mile requirement from a straight line measure to actual driving distance, an update that VA Secretary Bob McDonald said, “will allow more veterans to access care when and where they want it.”

But some critics say that the Choice Program still doesn’t go far enough because it fails to account for veterans who live within 40 miles of a VA facility but need care beyond what that facility offers.

For example, the MilitaryTimes cites the case of Mark Gendron, an Air Force veteran who lives within 40 miles of a VA clinic with basic services, but not the specialty psychiatric services he needs for his post-traumatic stress disorder. Gendron lives 70 miles from the nearest VA psychiatrist and isn’t eligible to be seen by a non-VA specialist due to his proximity to a VA clinic.

“I just want the care I need,” Gendron told MilitaryTimes. “I shouldn’t have to deal with this.”

A similar situation exists for mesothelioma patients. There are only a handful of VA centers nationwide with the expertise needed to treat veterans suffering from mesothelioma and other asbestos diseases. Research suggests mesothelioma patients have better outcomes at facilities with greater expertise in treating the rare cancer. Even hospitals with excellent oncology programs may not be well-suited to treat mesothelioma, a cancer that disproportionately affects Navy and other veterans, who make up around 30 percent of all cases.

If pending Congressional legislation becomes law, however, patients who live farther than 40 miles from a mesothelioma clinic may be able see a mesothelioma specialist closer to home.

According to The Hill, companion bills authored by Sen. Jerry Moran (R-Kan.) and Rep. Markwayne Mullin (R-Okla.) address the plight of veterans who don’t live close to a VA facility that offers the care they need.

“Our legislation calls on the VA to use its authority to provide veterans access to non-VA health care when the nearest VA medical facility within 40 miles drive time from a veteran’s home does not offer the care sought by the veteran,” write the congressmen in an op-ed.

The full text of the House and Senate bills can be read here and here.

For more information on the Veterans Choice Program, visit the VA website.

https://www.va.gov/opa/choiceact/

Sources:

• MilitaryTimes
  https://www.militarytimes.com/story/military/benefits/veterans/2015/04/24/veterans-choice-40-miles/26295537/
• op-ed
  https://thehill.com/opinion/op-ed/241458-va-choice-program-must-work-better-for-our-veterans
• better outcomes
  https://onlinelibrary.wiley.com/doi/10.1111/codi.12975/abstract
• Research suggests
  https://www.lungcancerjournal.info/article/S0169-5002%2815%2900157-9/abstract

VA Secretary Wants to Use Funds for Budget Shortfall

• Nancy Meredith
• Veterans

The Department of Veterans Affairs is facing a $2.6 billion financial shortfall that it says is caused by increased veteran demand for healthcare. Deputy VA Secretary Sloan Gibson plans to ask Congress for permission to use money from the Veterans Choice program to cover the funding gap, a measure that could hurt veterans with mesothelioma who seek treatment at a non-VA care facility.

The Veterans Choice program is the centerpiece of a $16.3 billion VA reform law approved by Congress last year in response to a VA scandal over long patient wait times and falsified records. Of the $16.3 billion, $10 billion was put into a fund that allows veterans who are unable to secure an appointment at a VA medical facility within 30 days or who live more than 40 miles from the nearest VA facility to seek care at a private hospital.

More recently Congress amended the legislation to define the 40-mile rule as actual driving distance, not “as the crow flies” distance. And the House is currently considering another amendment to the Choice program that would allow veterans living within 40 miles of a VA facility to seek care at a private facility if their local VA hospital does not offer the specific services they require, such as mental health or cancer treatment services. This would be very beneficial to veterans with mesothelioma who are only able to receive the specialized care they need at a handful of VA mesothelioma centers as well as those unable to get an appointment with a VA oncologist within 30 days.

Secretary Gibson, according to The Columbus Dispatch, says that the program got off to a rocky start, but has expanded significantly in recent months and is likely to expand even more. The ability of the program to meet the health needs of veterans with private care, however, whether they live in rural areas or simply cannot secure a timely appointment, would be hampered by the appropriation of $2.6 billion to other VA health care costs.

That’s more than one-quarter of the entire budget of the Choice program, which runs through August 2017 or until the $10 billion is used up. Using up $2.6 billion of that budget to adjust for what some are calling yet another example of VA mismanagement doesn’t add up for veterans helped by the Choice program.

While Gibson attributes the budget shortfall to increased demand at VA medical facilities—which he says has increased by 7 million appointments in the past year—others have been more critical of the VA.

“The VA’s problem isn’t funding—it’s outright failure,” said House Speaker John Boehner at a news conference. “Absolute failure to take care of our veterans.”

Wait times longer than 30 days for VA appointments have gone up by 50 percent in the last year, a clear sign that, whether due to bureaucratic missteps or more veterans seeking care, the Choice program is needed now more than ever.

Rep. Jeff Miller, chairman of the Veterans Affairs Committee, says that he is prepared to give the VA Choice program funds to pay for daily health care expenses, according to Stars and Stripes, but in return will demand changes to the way the VA manages its finances.

Veterans who need help paying for mesothelioma medical services at a non-VA facility are encouraged to contact Belluck & Fox, LLP for a free case review. A lawsuit against the companies responsible for your asbestos exposure could provide funds for medical care, lost wages and other expenses related to your illness.

Veterans may also be available for monthly compensation from the VA. Use our VA Benefit Tool to find out whether you qualify.

Sources:

• The Columbus Dispatch
  https://www.dispatch.com/content/stories/national_world/2015/06/25/0625-va-budget-shortfall.html
• Stars and Stripes
  https://www.stripes.com/news/veterans/house-panel-supports-closing-va-s-2-6-billion-funding-gap-1.354590

Determining the Appropriate Time For the Flu Shot in Mesothelioma Patients

• Nancy Meredith
• Featured News

For many, fall brings with it the vibrant color of the leaves, pumpkins, cinnamon and the anticipation of the holidays. It also brings with it flu and cold season. Thanks to the widespread availability of the flu shot, however, keeping the flu at bay is easier. Although for mesothelioma patients, that may not be the case.

According to an article from MD Anderson Cancer Center, home to the Mesothelioma Program that cares for more patients with mesothelioma than almost any other center in the U.S., when it comes time to get the flu shot, cancer patients should time it around their chemotherapy treatments. Specifically, the author suggests getting the flu shot two weeks prior to the first chemotherapy treatment or between chemo cycles, if treatment has already begun. Mesothelioma and cancer patients should not take the flu mist form of the flu since it contains an active virus.

“Your family members should also get the flu virus injection instead of the nasal mist,” says Shobha Pai, a physician assistant at MD Anderson in The Woodlands. “By protecting themselves from the flu, they’re also protecting you from getting it from them.”

Mesothelioma patients may still be susceptible to developing the flu due to their weakened immune system caused by the cancer and the chemotherapy treatments. The Centers for Disease Control and Prevention reports in  “Frequently Asked Flu Questions 2017-2018 Influenza Season” that even after vaccination it is still possible to get sick with the flu. “Flu vaccination is not a perfect tool, but it is the best way to protect against flu infection,” the CDC notes.

The CDC recommends that people get a flu vaccine by the end of October, if possible. However, getting vaccinated later can still be beneficial.

Pleural mesothelioma is a rare, aggressive form of cancer primarily caused by exposure to airborne asbestos fibers, that affects the lining of the lungs. Mesothelioma symptoms include a persistent cough, and over half of the pleural mesothelioma patients suffer pain in the lower, back and sides of the chest. If a patient gets the flu, these symptoms will worsen and the patient may need hospitalization.

It is especially important for cancer patients to stay away from sick people and to wash their  hands to reduce the spread of germs. Mesothelioma patients who develop the flu should contact their oncologist immediately to determine if they need medical care.

Close to 3,000 Americans are diagnosed with mesothelioma each year. There is no known cure for the disease.

I Wish I Could Have Frozen Time Without Mesothelioma

• Joseph Belluck
• Faces of Mesothelioma, Uncategorized

I can’t believe that the lives of my family have been affected by mesothelioma for over five years. It’s impossible for me to believe that Dad has been gone for four of them. Where has the time gone?

Over these past 5 ½ years, my family has undergone many changes. Life continues on even though it feels as though time is stagnant. I remember in the days immediately following my father’s diagnosis walking through the halls of the hospital. I watched people smile, wondering how they could be happy in the same time that my life was falling apart. Patients were being discharged onto a full recovery; as happy as I was for them, I couldn’t help but wonder what shape my Dad’s life was going to take.

Knowing what I do now, I would have liked to fast forward time to three months later and freeze it with Dad at that point. He had a clean bill of health; no evidence of disease on his scans, and getting stronger every day after the ravaging effects of chemotherapy. He was happy, and hopeful that life would go on as if meso had never entered his life. If I could have kept him that way forever, I would have. But we all know that’s not possible.

Don Smitley and Jennifer Gelsick

Looking at things from a rational point of view, we have to find a way to understand that, although time marches on, our memories, these moments frozen in time, can stay with us forever. We can choose to focus on the best of times instead of our hardest struggles. Keep those memories close to your heart; it is how I am choosing to remember my father, just the way he would have wanted.