Our goal is to provide the appropriate information to families battling mesothelioma to empower them to participate in making the decisions about their care, and to offer some measure of hope and support.
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Table of Contents
With the internet, social media, and many other modern forms of communication, everyone’s “brand” and naming has taken on increased importance. It is not unusual for a company to rebrand itself with a different feature that they want people to associate with their business. In this case, there is a town’s name associated with disease and death. The news from Asbestos, Canada a year ago was that the town leaders wanted to change the name because of the negative connotations that the word asbestos holds. Asbestos, Canada is the home to the Jeffrey Mine and is a small town 80 […]
COVID-19 has impacted our daily lives throughout the U.S. This previously unknown virus that has caused the pandemic we are currently in has scientists all over the world researching for a cure. The virus is educating a lot of people about the clinical trial process. As scientists race to find a cure for this deadly virus, the process that is in place for approval for new medications, treatments, and vaccinations is being questioned. Why does it take so long? Why is participation so low? Patients, family members, and experts who are dealing with malignant mesothelioma know that the process to […]
When someone is diagnosed with malignant mesothelioma, the battle is both mental and physical. The symptoms are numerous and some more frightening than others. Mentally it can have an outsized effect on one’s peace of mind, affecting your physical wellbeing as well as your emotional wellbeing. So how does a mesothelioma patient keep mind and body in sync during a strenuous time like the coronavirus pandemic? First, look around at yourself and jot down your physical symptoms. Put factual numbers to paper. A few strategies you might consider include: Monitor daily weight. Monitor calorie intake if you can, or just […]
Mesothelioma Help is proud to help a future physician’s assistant in Minnesota achieve her education goal by awarding her $500 as part of the annual Jan Egerton & Don Smitley Mesothelioma Scholarship contest. Sheri Sanford, a student at Normandale Community College, was awarded the fourth-place prize in the cancer organization’s national essay contest this year. In her essay, Sheri shared her inspiration for switching gears in her career ─ going from dreams of becoming a lawyer to pursuing a master’s degree as a physician’s assistant with a focus in oncology. In 2016, Sheri’s uncle was diagnosed with malignant mesothelioma, a […]
MesotheliomaHelp.org is proud to award a nursing student from Albany State University in Georgia with the $1,250 second-place prize as part of the organization’s annual Jan Egerton & Don Smitley Mesothelioma Scholarship contest. Kelley Ann McGill, of Atlanta, was one of four students from across the nation to earn a scholarship in this year’s essay contest. In her essay, Kelley shared the story of her grandfather, a former electrical engineer who had always prided himself on working hard to stay healthy. Unfortunately, her grandfather’s work environment was not always a healthy one, and over the course of his career, he […]
Each and every person who battles mesothelioma shows amazing strength and resolve in a time of extreme adversity.
Every journey with mesothelioma is unique, and when I write about the warriors and their families I try to highlight that one distinction that sets them apart and shows their fighting spirit.
Nancy is a blog and content writer with more than 20 years of professional experience. Nancy has been writing about mesothelioma and cancer for close to eight years.
Getting at the basis of why one person develops mesothelioma and another person doesn’t, that is going to hold a clue to really fighting it. Then we will know what to do the gene therapy on.
Ricki Lewis has a PhD in genetics and is the author of “The Forever Fix: Gene Therapy and the Boy Who Saved it.”
Ricki has written guest articles detailing the intricacies of gene therapy for MesotheliomaHelp and guided our lead author to relevant topics and key information on the background and future of genetics in cancer therapy.
Her support ensures that our readers get accurate, factual information.
Lisa Hyde-Barrett has helped ease the stress of patients and their families by offering a comforting hand. Lisa has 25 years of experience as a thoracic surgery nurse at Brigham and Women’s Hospital a top 5 nationally ranked cancer hospital.
Lisa works with leading nationally-recognized surgeons who specialize in mesothelioma. Through her extensive experience caring for mesothelioma patients, she is a facilitator for the patient to help them maintain control and dignity over their treatment of their disease and to assist with the patient’s wishes. She is passionate about helping the mesothelioma community.
Anyone who has been diagnosed with mesothelioma knows the stress associated with understanding and managing the disease.
Malignant mesothelioma is an aggressive cancer. For some, the journey is long and for others it can strike quickly and cruelly. It is imperative to remember that the person with the disease is someone who usually has a rich life filled with family, friends, and relationships before the diagnosis. While malignant mesothelioma is a rare disease, unfortunately the distress it causes can be life altering for those left to deal with the aftermath. The person diagnosed with malignant mesothelioma can be anyone: a spouse, mother, father, grandmother, grandfather, aunt, uncle, child, or friend. These people can never be replaced. Their […]
Science is advanced through research, and the research process begins with clinical trials. Many us of have grown more familiar with the clinical trial process with the search for a vaccine for COVID-19. As the search continues for a cure for malignant mesothelioma, it is imperative that people involved in the mesothelioma community continue to be aware of what scientists are researching at this point for potential cures and quality life-extending treatments. Chemotherapy has been the standard of care for patients with malignant pleural mesothelioma since it was approved by the FDA in 2004. Scientists continue to discover what the […]
The COVID-19 virus has disrupted all of our lives and routines. Things that we always did and places we always went are no longer available. The pandemic has forced us to all look at things we routinely do and challenged us to do them differently. Like in business, in medicine sometimes small disruptions can lead to larger innovative changes. In the treatment of malignant mesothelioma, disruptors have led the way. Over the years we have seen doctors challenging the previously held belief that there was no treatment for malignant mesothelioma time and time again. The treatment options and longer quality […]
We frequently suggest to patients and patient’s families to seek out a Mesothelioma Center of Excellence if diagnosed with this rare disease. For many, this includes traveling to get care at one of these centers. When the pandemic was first at its peak, a lot of travel was suspended and many just did not feel comfortable traveling away from home. For some who live locally to their Mesothelioma Center of Excellence they were able to have treatment but that was not the case for everyone. Each state has lifted some restrictions that were incorporated during the crisis of the pandemic, […]
The COVID-19 pandemic upended our usual routine and impacted all of our lives. For people that needed medical treatment it became a different experience. Having treatment for anything but coronavirus related illness became the exception. No visitors were allowed in the hospitals for patients no matter what their diagnosis. Many people put off necessary treatment for a later time. Facing cancer at any time is frightening. Facing treatment for a rare cancer such as malignant mesothelioma, alone without your loved ones, can add another layer of stress. Reading and hearing about people’s experiences you think would prepare you for seeing […]
Caregivers of Mesothelioma Patients
It is important for mesothelioma patients to reach out for help. It doesn’t mean you are weak, in fact, it can make you stronger. This disease is challenging and leaning on others will help ease your journey.
Amanda became a caregiver for her father after he was diagnosed with mesothelioma. She provides insight into how caregivers can make a difference for those battling mesothelioma. Follow on Twitter.
Watching my father’s journey with mesothelioma has made me realize that you need to cherish every moment that God blesses you with. Love with your whole heart, give with all of your being, and never lose sight of your faith.
Jennifer wrote about life for her family as her father, Don Smitley, battled mesothelioma. Mr. Smitley passed away in 10/2013 and now Jennifer writes with a different perspective, helping those with mesothelioma.
My family and I have been riding the so-called “mesothelioma roller-coaster” for over six years now. The ups and downs of this disease are never-ending and, even though my father has since passed away, they continue. When my Dad was diagnosed, it was instant confusion followed by anger mixed with sadness, anxiety, and grief. Upon completion of surgery and chemotherapy, it was relief and happiness. I remember telling my husband after Dad got a report from the doctor that there was no evidence of disease, that I had thought that I would never be able to truly smile again. During […]
For many different reasons, sometimes it’s hard to ask for help. You don’t know who to ask, you don’t want to impose, you’re embarrassed, or you don’t want to admit that you need the assistance. These can ring true for anyone, but I’ve found it to be quite prevalent in the mesothelioma community. This group is made up of warriors! It’s a group of strong, resilient, and let’s face it… sometimes stubborn (and that’s not a bad thing!) people who are steadfast in their fight. They don’t want to make others feel as though they are putting them out, or […]
MesotheliomaHelp is pleased to have author C. Hope Clark as a guest blog writer. Recently, both of Hope’s parents were diagnosed with Alzheimer’s, bringing her daily routine to a screeching halt. Much like mesothelioma caregivers, Hope found that she had to take care of her needs in order to better care for her parents. By C. Hope Clark, Guest Author I’m a novelist, with eight mysteries to my credit. Also, through my educational newsletter at FundsforWriters.com, I’ve motivated writers for 19 years. We’re award-winning, delivering a message each and every Friday for all those 19 years. A nothing-can-get-in-our-way sort of […]
One of the most difficult things in life is to see someone you love suffer. Patients who are diagnosed with malignant mesothelioma, or any cancer or life threatening illness, have a range of emotional ups and downs on their journey. The family member, spouse, partner or friend, that supports them also deals with an enormous emotional burden. According to a statistic from AARP, approximately 44 million Americans provide 37 billion hours of care for their loved ones, whether it be sick, older or disabled people. The economic value of the services that family caregivers provide is estimated at approximately $350 […]
From time to time, there are moments in your life where things just click. Everything falls into place and makes sense, for good or for naught. Throughout my family’s journey with mesothelioma, we all had these “Aha!” moments. The first of these moments came from my Dad himself. We were visiting the Flight 93 Memorial together as a family. While we were walking, he had to stop because he couldn’t catch his breath. He had been having some trouble for a few months, but he later told me that this was the moment he realized that something was seriously wrong. […]
Daily Challenges of a
I hope and pray that something will be found to stop the dividing of these unnatural cells soon and this will then put an end to the many deaths we have through mesothelioma.
Jan Egerton of England lost her battle with mesothelioma in January 2014. She endured years of surgery, chemotherapy, radiation and more. Jan also chronicled her journey through her blog, Mesothelioma – Jan’s Journey.