Our goal is to provide the appropriate information to families battling mesothelioma to empower them to participate in making the decisions about their care, and to offer some measure of hope and support.
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Mesothelioma Help is proud to help a future physician’s assistant in Minnesota achieve her education goal by awarding her $500 as part of the annual Jan Egerton & Don Smitley Mesothelioma Scholarship contest. Sheri Sanford, a student at Normandale Community College, was awarded the fourth-place prize in the cancer organization’s national essay contest this year. In her essay, Sheri shared her inspiration for switching gears in her career ─ going from dreams of becoming a lawyer to pursuing a master’s degree as a physician’s assistant with a focus in oncology. In 2016, Sheri’s uncle was diagnosed with malignant mesothelioma, a […]
MesotheliomaHelp.org is proud to award a nursing student from Albany State University in Georgia with the $1,250 second-place prize as part of the organization’s annual Jan Egerton & Don Smitley Mesothelioma Scholarship contest. Kelley Ann McGill, of Atlanta, was one of four students from across the nation to earn a scholarship in this year’s essay contest. In her essay, Kelley shared the story of her grandfather, a former electrical engineer who had always prided himself on working hard to stay healthy. Unfortunately, her grandfather’s work environment was not always a healthy one, and over the course of his career, he […]
In January, MesotheliomaHelp reported on the use of a Biocept, Inc. blood test as a possible early detection tool for mesothelioma. Now, the company reports it is testing the same tool to determine if it can help predict disease recurrence in lung cancer patients. According to a July 23 press release from Biocept, Inc., the company is partnering with UC San Diego Moores Cancer Center with two clinical studies – one to predict cancer recurrence and another to predict treatment response. The studies will use Biocept’s Target Selector liquid biopsy assays to detect circulating tumor cells and circulating tumor DNA. […]
Ubiquitous computing can no longer be ignored in the medical field. With nearly every patient and doctor connected and constantly available, mobile apps and personal medical devices are beginning to play a role in cancer care. Doctors can monitor a mesothelioma patient’s vital signs, side effects and symptoms through a cell phone. Now, researchers report they are taking the “power of computing” one step further by tracking cancer metastasis, or the spread of cancer, through a computer program. In an effort to understand what drives metastasis, hoping to then uncover new therapies to stop cancer from spreading, researchers from Princeton […]
The National Institutes of Health has announced its “All of Us” research program is now open for enrollment. The program is looking for one million people to share their health information over decades to be used to speed up health research breakthroughs and to advance precision medicine. Part of the Precision Medicine Initiative introduced by President Obama in January 2015, the “All of Us” program was created to support research to develop more effective ways to prolong health and treat disease. With the data bringing so many different “genes, microbiomes, environments, and lifestyles,” the information will make possible “more effective, […]
Each and every person who battles mesothelioma shows amazing strength and resolve in a time of extreme adversity.
Every journey with mesothelioma is unique, and when I write about the warriors and their families I try to highlight that one distinction that sets them apart and shows their fighting spirit.
Nancy is a blog and content writer with more than 20 years of professional experience. Nancy has been writing about mesothelioma and cancer for close to eight years.
Getting at the basis of why one person develops mesothelioma and another person doesn’t, that is going to hold a clue to really fighting it. Then we will know what to do the gene therapy on.
Ricki Lewis has a PhD in genetics and is the author of “The Forever Fix: Gene Therapy and the Boy Who Saved it.”
Ricki has written guest articles detailing the intricacies of gene therapy for MesotheliomaHelp and guided our lead author to relevant topics and key information on the background and future of genetics in cancer therapy.
Her support ensures that our readers get accurate, factual information.
Lisa Hyde-Barrett has helped ease the stress of patients and their families by offering a comforting hand. Lisa has 25 years of experience as a thoracic surgery nurse at Brigham and Women’s Hospital a top 5 nationally ranked cancer hospital.
Lisa works with leading nationally-recognized surgeons who specialize in mesothelioma. Through her extensive experience caring for mesothelioma patients, she is a facilitator for the patient to help them maintain control and dignity over their treatment of their disease and to assist with the patient’s wishes. She is passionate about helping the mesothelioma community.
Anyone who has been diagnosed with mesothelioma knows the stress associated with understanding and managing the disease.
Being diagnosed with malignant mesothelioma can be an isolating experience. Due to the rarity of the disease it can be difficult to cope with having a deadly disease and to remain positive. Coping for many can be difficult, despite support groups, counselors, and family support. Although they all have the best intentions, sometimes just talking with someone who is also on a mesothelioma journey can be helpful. Summer is a special time of year. Routines are broken and life can slow down a bit. Memories that last a lifetime can be made. For many people summer is the time for […]
Relationships are what make life worth living. Throughout life we have many relationships – parents, siblings, friends, teachers, significant others, neighbors, co-workers. People come and go into our lives, depending on what we are doing, where we are living and working. Some relationships are long and fruitful, and others can be short and forgettable. Not too many decades ago our relationship with our doctor was usually with one doctor, our family practitioner. Then it progressed to specialization, an OB/GYN, pediatrician, a primary care doctor, surgeon, and any other specialists that you might require. Now in the age of specialization and […]
“Summertime and the living is easy,” as we change from Spring to Summer things start to slow down for most of us. The hurried pace we usually live at slows, and many of us take the time to enjoy the weather, our families and vacations. This is the time of year that most look forward to. One of the most welcome things about summer is that it allows us time to reflect on things and make memories that will stay with us. For mesothelioma patients and their families, this time of the year can allow some time to reflect on […]
Recently, two very public figures, who looked like they had it all, committed suicide. Those closest to them revealed that they had struggled with their demons for many years. When someone is a celebrity we think we “know” them: we know their work, but we do not know them. This is a wake-up call for all of us to be more aware of how we and our loved ones are really feeling. Suicide happens because the person wants their overwhelming ‘pain’ to end. According to research, 90% of people who die by suicide have an existing mental illness or substance […]
Mesothelioma patients often face a busy schedule when initially diagnosed, and when they begin undergoing treatments. There are a lot of tests and consultations, and decisions to be made. There is a sense of urgency in getting treatment under way as soon as possible. During this phase of the disease, family and friends are frequently rallying around and trying to provide as much support as possible. There are other patients also offering support if needed. Support groups, friendships, and new relationships are formed. At the end of the journey, when a person has exhausted his clinical options and has shifted […]
Caregivers of Mesothelioma Patients
It is important for mesothelioma patients to reach out for help. It doesn’t mean you are weak, in fact, it can make you stronger. This disease is challenging and leaning on others will help ease your journey.
Amanda became a caregiver for her father after he was diagnosed with mesothelioma. She provides insight into how caregivers can make a difference for those battling mesothelioma. Follow on Twitter.
Watching my father’s journey with mesothelioma has made me realize that you need to cherish every moment that God blesses you with. Love with your whole heart, give with all of your being, and never lose sight of your faith.
Jennifer wrote about life for her family as her father, Don Smitley, battled mesothelioma. Mr. Smitley passed away in 10/2013 and now Jennifer writes with a different perspective, helping those with mesothelioma.
My family and I have been riding the so-called “mesothelioma roller-coaster” for over six years now. The ups and downs of this disease are never-ending and, even though my father has since passed away, they continue. When my Dad was diagnosed, it was instant confusion followed by anger mixed with sadness, anxiety, and grief. Upon completion of surgery and chemotherapy, it was relief and happiness. I remember telling my husband after Dad got a report from the doctor that there was no evidence of disease, that I had thought that I would never be able to truly smile again. During […]
For many different reasons, sometimes it’s hard to ask for help. You don’t know who to ask, you don’t want to impose, you’re embarrassed, or you don’t want to admit that you need the assistance. These can ring true for anyone, but I’ve found it to be quite prevalent in the mesothelioma community. This group is made up of warriors! It’s a group of strong, resilient, and let’s face it… sometimes stubborn (and that’s not a bad thing!) people who are steadfast in their fight. They don’t want to make others feel as though they are putting them out, or […]
MesotheliomaHelp is pleased to have author C. Hope Clark as a guest blog writer. Recently, both of Hope’s parents were diagnosed with Alzheimer’s, bringing her daily routine to a screeching halt. Much like mesothelioma caregivers, Hope found that she had to take care of her needs in order to better care for her parents. By C. Hope Clark, Guest Author I’m a novelist, with eight mysteries to my credit. Also, through my educational newsletter at FundsforWriters.com, I’ve motivated writers for 19 years. We’re award-winning, delivering a message each and every Friday for all those 19 years. A nothing-can-get-in-our-way sort of […]
One of the most difficult things in life is to see someone you love suffer. Patients who are diagnosed with malignant mesothelioma, or any cancer or life threatening illness, have a range of emotional ups and downs on their journey. The family member, spouse, partner or friend, that supports them also deals with an enormous emotional burden. According to a statistic from AARP, approximately 44 million Americans provide 37 billion hours of care for their loved ones, whether it be sick, older or disabled people. The economic value of the services that family caregivers provide is estimated at approximately $350 […]
From time to time, there are moments in your life where things just click. Everything falls into place and makes sense, for good or for naught. Throughout my family’s journey with mesothelioma, we all had these “Aha!” moments. The first of these moments came from my Dad himself. We were visiting the Flight 93 Memorial together as a family. While we were walking, he had to stop because he couldn’t catch his breath. He had been having some trouble for a few months, but he later told me that this was the moment he realized that something was seriously wrong. […]
Daily Challenges of a
I hope and pray that something will be found to stop the dividing of these unnatural cells soon and this will then put an end to the many deaths we have through mesothelioma.
Jan Egerton of England lost her battle with mesothelioma in January 2014. She endured years of surgery, chemotherapy, radiation and more. Jan also chronicled her journey through her blog, Mesothelioma – Jan’s Journey.