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Our goal is to provide the appropriate information to families battling mesothelioma to empower them to participate in making the decisions about their care, and to offer some measure of hope and support.

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Featured News

Nurses’ Corner

Caregivers

Mesothelioma Warriors

Featured News

Recent News

Expressing Gratitude as a Mesothelioma Patient

Expressing Gratitude as a Mesothelioma Patient

This time of year is ideally filled with family and friends getting together and creating memories. For people that are facing health challenges like being diagnosed with malignant mesothelioma, the holidays can be a challenging time. When your world has been upended and you may not be at home for your usual festivities or you are not feeling the holiday mood, feeling grateful can be hard to do. Expressing gratitude may be even harder. Sometimes it is necessary to dig down deep within yourself to express thankfulness to those that are helping you. During this time of year there is […]

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Thanksgiving is Different This Year for Mesothelioma Patients

Thanksgiving is Different This Year for Mesothelioma Patients

Each year at this time we celebrate Thanksgiving. Since the Pilgrims started this tradition it is a time to share and be grateful for our blessings. As Thanksgiving 2021 rapidly approaches, we reflect on what this year’s holiday means to ourselves and our loved ones and to our collective community.   As we all know, what makes this year different from last year and previous celebrations of Thanksgiving is the Covid-19 pandemic. Last year, 2020, was pre-vaccination. A lot of people had small celebrations and stayed home. This year with vaccinations available we take a step closer to what normal used […]

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For Mesothelioma Patients, Time is What You Make of It

For Mesothelioma Patients, Time is What You Make of It

Time is one of our greatest assets. According to Miriam Webster the meaning is “the thing that is measured as seconds, minutes, hours , days, years, etc.” Time is something we all have, we just don’t know how much.  Many illnesses threaten our timeline and sometimes force us to look at how we spend our time.  Malignant mesothelioma is bad news, with some options, but still with no cure. Researchers, doctors and scientists continue to push science for more information. When diagnosed with this disease or any other serious illness, looking for a timeline is natural. The question often asked […]

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18th Annual Mesothelioma Awareness Day

18th Annual Mesothelioma Awareness Day

Today is the 18th Annual Mesothelioma Awareness Day. This day is set aside to raise awareness of malignant mesothelioma and the need for research. Malignant mesothelioma is a rare disease that affects around 3,000 people a year in the United States. A disease is considered rare if it affects less than 200,000 Americans a year. The leading cause of malignant mesothelioma is exposure to asbestos. The exposure can happen as far as 50 years in the past. A lot of Americans assume that this is a disease that does not happen anymore because they think asbestos is banned. Neither of […]

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Like America, Transitions in Care are Critical for Mesothelioma Patients

Like America, Transitions in Care are Critical for Mesothelioma Patients

As the United States awaits the peaceful transfer of power from one administration to another, transitions are at the forefront of the news. We are all being reminded of what an important role that transitions play in life. Whether the transitions be personal or public, transitions are times of change. Transitions involve communication and education, they can be physical or emotional. The importance of transitions in dealing with the medical system cannot be understated. Transitions of care have been studied extensively in the health care system and identified as an area that needs improvement.   Different factors that can influence a […]

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Each and every person who battles mesothelioma shows amazing strength and resolve in a time of extreme adversity.
Every journey with mesothelioma is unique, and when I write about the warriors and their families I try to highlight that one distinction that sets them apart and shows their fighting spirit.

Nancy is a blog and content writer with more than 20 years of professional experience. Nancy has been writing about mesothelioma and cancer for close to eight years.

Getting at the basis of why one person develops mesothelioma and another person doesn’t, that is going to hold a clue to really fighting it. Then we will know what to do the gene therapy on.

Ricki Lewis has a PhD in genetics and is the author of “The Forever Fix: Gene Therapy and the Boy Who Saved it.”
Ricki has written guest articles detailing the intricacies of gene therapy for MesotheliomaHelp and guided our lead author to relevant topics and key information on the background and future of genetics in cancer therapy.
Her support ensures that our readers get accurate, factual information.

Nurses’ Corner

Lisa Hyde-Barrett has helped ease the stress of patients and their families by offering a comforting hand. Lisa has 25 years of experience as a thoracic surgery nurse at Brigham and Women’s Hospital a top 5 nationally ranked cancer hospital.
Lisa works with leading nationally-recognized surgeons who specialize in mesothelioma. Through her extensive experience caring for mesothelioma patients, she is a facilitator for the patient to help them maintain control and dignity over their treatment of their disease and to assist with the patient’s wishes. She is passionate about helping the mesothelioma community.

Anyone who has been diagnosed with mesothelioma knows the stress associated with understanding and managing the disease.

Recent Articles

Where Can Mesothelioma Patients Find Hope?

Where Can Mesothelioma Patients Find Hope?

With the state of the world right now, it is hard to maintain a hopeful outlook. Is there a place for hope? From the larger version of what is going on in the world’s stage, to the very personal journeys we are all on, is hope enough or even possible with the current world events? It is hard not to despair against the overwhelming odds and events that are going on. Despair being the opposite of hope. When diagnosed with a life threatening cancer, or any time we pause to reflect on our lives, we review our wishes, our hopes, […]

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Mesothelioma Patients Must Invest in Themselves

Mesothelioma Patients Must Invest in Themselves

Undergoing treatment for mesothelioma can be a challenge to sustain for the long haul. The mesothelioma team invests in the patient, with their expertise and time. This treatment plan is most successful when the patient is willing to partner with the team as well. For most treatments of illnesses, the best equation is that the team and the patient are invested in whatever it takes to make the best possible outcome for the patient. Usually the relationship between the patient and team is ongoing and long term. Once the plan is formulated and executed, a plan that could involve radiation, […]

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A Necessary Discussion: End-of-Life Options for Mesothelioma Patients

A Necessary Discussion: End-of-Life Options for Mesothelioma Patients

The COVID-19 pandemic has been a frightening time for all of us. The uncertain nature of the disease and number of people affected brings the importance of what we want at the end of our lives to the forefront. With hospitals and skilled nursing facilities limiting visitors and the inability of some to travel, it is necessary to discuss what we wish to happen at the end of life with our loved ones. We all know that when one person within our family or group of friends gets diagnosed with a severe illness like malignant mesothelioma, it affects all of […]

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New Year is Time for Reflection for Mesothelioma Patients

New Year is Time for Reflection for Mesothelioma Patients

Happy New Year! As we welcome the beginning of 2022 and the end of 2021 we reflect on how time keeps marching on. The mesothelioma community continues to be a resilient, caring group. Dealing with a life threatening rare disease along with a pandemic is challenging for patients and loved ones.  Now that COVID-19 has been with us for almost two years, all of us are reminded about the importance of resilience and patience in taking care of ourselves and each other. The New Year is a time of new beginnings and new promises, a fresh slate. With the New […]

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Mesothelioma Community Recognizes November as National Family Caregivers Month

Mesothelioma Community Recognizes November as National Family Caregivers Month

November is recognized as National Family Caregivers Month. First recognized in November 2013, by President Obama, the purpose of this month is to raise awareness for family  caregivers and to improve their overall lives and well being.  Over the course of life, chances are that we all will be caregivers at some point for a parent, sibling, loved one, partner, neighbor, or friend. It is not something that we plan on or prepare for, it usually just happens. Family caregivers come in all ages, sexes, shapes. They are as varied as all of us. Each one does what works for […]

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Caregivers of Mesothelioma Patients

Amanda

It is important for mesothelioma patients to reach out for help. It doesn’t mean you are weak, in fact, it can make you stronger. This disease is challenging and leaning on others will help ease your journey.

Amanda became a caregiver for her father after he was diagnosed with mesothelioma. She provides insight into how caregivers can make a difference for those battling mesothelioma. Follow on Twitter.

Jennifer

Watching my father’s journey with mesothelioma has made me realize that you need to cherish every moment that God blesses you with. Love with your whole heart, give with all of your being, and never lose sight of your faith.

Jennifer wrote about life for her family as her father, Don Smitley, battled mesothelioma. Mr. Smitley passed away in 10/2013 and now Jennifer writes with a different perspective, helping those with mesothelioma.

Recent Articles

Mesothelioma Community Recognizes November as National Family Caregivers Month

Mesothelioma Community Recognizes November as National Family Caregivers Month

November is recognized as National Family Caregivers Month. First recognized in November 2013, by President Obama, the purpose of this month is to raise awareness for family  caregivers and to improve their overall lives and well being.  Over the course of life, chances are that we all will be caregivers at some point for a parent, sibling, loved one, partner, neighbor, or friend. It is not something that we plan on or prepare for, it usually just happens. Family caregivers come in all ages, sexes, shapes. They are as varied as all of us. Each one does what works for […]

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November is National Family Caregivers Month

November is National Family Caregivers Month

October was Health Literacy Month and November is National Family Caregivers Month. Both of these special months highlight the importance of education, support, and understanding when dealing with or caring for a loved one. When faced with a diagnosis of malignant mesothelioma, understanding of the disease and what to look for helps both the patient and the caregiver. The definition of health literacy from the Affordable Care Act of 2010 is “the degree to which an individual has the capacity to obtain, communicate, process, and understand basic health information and services to make health decisions.” There is nothing simple about […]

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Riding the Mesothelioma Roller Coaster

Riding the Mesothelioma Roller Coaster

My family and I have been riding the so-called “mesothelioma roller-coaster” for over six years now. The ups and downs of this disease are never-ending and, even though my father has since passed away, they continue. When my Dad was diagnosed, it was instant confusion followed by anger mixed with sadness, anxiety, and grief.  Upon completion of surgery and chemotherapy, it was relief and happiness.  I remember telling my husband after Dad got a report from the doctor that there was no evidence of disease, that I had thought that I would never be able to truly smile again. During […]

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Family Members Want to Care for Their Loved Ones with Mesothelioma

Family Members Want to Care for Their Loved Ones with Mesothelioma

For many different reasons, sometimes it’s hard to ask for help.  You don’t know who to ask, you don’t want to impose, you’re embarrassed, or you don’t want to admit that you need the assistance.  These can ring true for anyone, but I’ve found it to be quite prevalent in the mesothelioma community. This group is made up of warriors!  It’s a group of strong, resilient, and let’s face it… sometimes stubborn (and that’s not a bad thing!) people who are steadfast in their fight.  They don’t want to make others feel as though they are putting them out, or […]

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When Caregiving Interrupts Your Life, Get Back to the Basics

When Caregiving Interrupts Your Life, Get Back to the Basics

MesotheliomaHelp is pleased to have author C. Hope Clark as a guest blog writer. Recently, both of Hope’s parents were diagnosed with Alzheimer’s, bringing her daily routine to a screeching halt. Much like mesothelioma caregivers, Hope found that she had to take care of her needs in order to better care for her parents. By C. Hope Clark, Guest Author I’m a novelist, with eight mysteries to my credit. Also, through my educational newsletter at FundsforWriters.com, I’ve motivated writers for 19 years. We’re award-winning, delivering a message each and every Friday for all those 19 years. A nothing-can-get-in-our-way sort of […]

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Daily Challenges of a
Mesothelioma Warrior

I hope and pray that something will be found to stop the dividing of these unnatural cells soon and this will then put an end to the many deaths we have through mesothelioma.

Jan Egerton of England lost her battle with mesothelioma in January 2014. She endured years of surgery, chemotherapy, radiation and more. Jan also chronicled her journey through her blog, Mesothelioma – Jan’s Journey.

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