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Our goal is to provide the appropriate information to families battling mesothelioma to empower them to participate in making the decisions about their care, and to offer some measure of hope and support.

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Featured News

Nurses’ Corner

Caregivers

Mesothelioma Warriors

Featured News

Recent News

New Immunotherapy Drugs Show Promising Results for Certain Cancers in Clinical Trials. Is Mesothelioma Next?

New Immunotherapy Drugs Show Promising Results for Certain Cancers in Clinical Trials. Is Mesothelioma Next?

Participation in Clinical Trials is how progress is made in medical research.  The trials are regulated and must conform to rigorous standards and be able to be replicated. Research scientists dedicate their careers to making progress with treatments for diseases using Clinical Trials. The inclusion and exclusion criteria are very specific. Some Clinical Trials are not able to be done due to lack of enrollment. Participation is voluntary and only with informed consent that the patient can withdraw at any time. In the United States it is estimated that only 5% of adults eligible to participate in a Clinical Trial […]

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For Patients, Nutrition and Exercise Plays an Important Part in the Mesothelioma Journey

For Patients, Nutrition and Exercise Plays an Important Part in the Mesothelioma Journey

Nutrition and exercise plays an important part in a person’s journey with Malignant Mesothelioma.  Recovering from Mesothelioma treatment can be difficult. Whether it is recovering from chemotherapy, radiation, or surgery it can be challenging regardless of the type of treatment you have experienced.  Nutrition can play a key role in recovering from your treatment. Choosing foods that are high in protein and fat will offer the most reward. Offering starchy foods or carbohydrates like pasta, bread, potatoes and sources of protein like fish, chicken, meats, nuts, turkey, and cheese are great options. For many, these food choices can be overwhelming […]

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Expressing Gratitude as a Mesothelioma Patient

Expressing Gratitude as a Mesothelioma Patient

This time of year is ideally filled with family and friends getting together and creating memories. For people that are facing health challenges like being diagnosed with malignant mesothelioma, the holidays can be a challenging time. When your world has been upended and you may not be at home for your usual festivities or you are not feeling the holiday mood, feeling grateful can be hard to do. Expressing gratitude may be even harder. Sometimes it is necessary to dig down deep within yourself to express thankfulness to those that are helping you. During this time of year there is […]

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Thanksgiving is Different This Year for Mesothelioma Patients

Thanksgiving is Different This Year for Mesothelioma Patients

Each year at this time we celebrate Thanksgiving. Since the Pilgrims started this tradition it is a time to share and be grateful for our blessings. As Thanksgiving 2021 rapidly approaches, we reflect on what this year’s holiday means to ourselves and our loved ones and to our collective community.   As we all know, what makes this year different from last year and previous celebrations of Thanksgiving is the Covid-19 pandemic. Last year, 2020, was pre-vaccination. A lot of people had small celebrations and stayed home. This year with vaccinations available we take a step closer to what normal used […]

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For Mesothelioma Patients, Time is What You Make of It

For Mesothelioma Patients, Time is What You Make of It

Time is one of our greatest assets. According to Miriam Webster the meaning is “the thing that is measured as seconds, minutes, hours , days, years, etc.” Time is something we all have, we just don’t know how much.  Many illnesses threaten our timeline and sometimes force us to look at how we spend our time.  Malignant mesothelioma is bad news, with some options, but still with no cure. Researchers, doctors and scientists continue to push science for more information. When diagnosed with this disease or any other serious illness, looking for a timeline is natural. The question often asked […]

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Each and every person who battles mesothelioma shows amazing strength and resolve in a time of extreme adversity.
Every journey with mesothelioma is unique, and when I write about the warriors and their families I try to highlight that one distinction that sets them apart and shows their fighting spirit.

Nancy is a blog and content writer with more than 20 years of professional experience. Nancy has been writing about mesothelioma and cancer for close to eight years.

Getting at the basis of why one person develops mesothelioma and another person doesn’t, that is going to hold a clue to really fighting it. Then we will know what to do the gene therapy on.

Ricki Lewis has a PhD in genetics and is the author of “The Forever Fix: Gene Therapy and the Boy Who Saved it.”
Ricki has written guest articles detailing the intricacies of gene therapy for MesotheliomaHelp and guided our lead author to relevant topics and key information on the background and future of genetics in cancer therapy.
Her support ensures that our readers get accurate, factual information.

Nurses’ Corner

Lisa Hyde-Barrett has helped ease the stress of patients and their families by offering a comforting hand. Lisa has 25 years of experience as a thoracic surgery nurse at Brigham and Women’s Hospital a top 5 nationally ranked cancer hospital.
Lisa works with leading nationally-recognized surgeons who specialize in mesothelioma. Through her extensive experience caring for mesothelioma patients, she is a facilitator for the patient to help them maintain control and dignity over their treatment of their disease and to assist with the patient’s wishes. She is passionate about helping the mesothelioma community.

Anyone who has been diagnosed with mesothelioma knows the stress associated with understanding and managing the disease.

Recent Articles

New Immunotherapy Drugs Show Promising Results for Certain Cancers in Clinical Trials. Is Mesothelioma Next?

New Immunotherapy Drugs Show Promising Results for Certain Cancers in Clinical Trials. Is Mesothelioma Next?

Participation in Clinical Trials is how progress is made in medical research.  The trials are regulated and must conform to rigorous standards and be able to be replicated. Research scientists dedicate their careers to making progress with treatments for diseases using Clinical Trials. The inclusion and exclusion criteria are very specific. Some Clinical Trials are not able to be done due to lack of enrollment. Participation is voluntary and only with informed consent that the patient can withdraw at any time. In the United States it is estimated that only 5% of adults eligible to participate in a Clinical Trial […]

Read more

For Patients, Nutrition and Exercise Plays an Important Part in the Mesothelioma Journey

For Patients, Nutrition and Exercise Plays an Important Part in the Mesothelioma Journey

Nutrition and exercise plays an important part in a person’s journey with Malignant Mesothelioma.  Recovering from Mesothelioma treatment can be difficult. Whether it is recovering from chemotherapy, radiation, or surgery it can be challenging regardless of the type of treatment you have experienced.  Nutrition can play a key role in recovering from your treatment. Choosing foods that are high in protein and fat will offer the most reward. Offering starchy foods or carbohydrates like pasta, bread, potatoes and sources of protein like fish, chicken, meats, nuts, turkey, and cheese are great options. For many, these food choices can be overwhelming […]

Read more

Memorial Day: One-Third of Mesothelioma Victims are Veterans

Memorial Day: One-Third of Mesothelioma Victims are Veterans

The end of May is when we stop as a country to remember our fallen soldiers. As the nation pays tribute to those that have sacrificed their lives for our freedom, this Memorial Day has special meaning. Memorial Day is a day to remember and honor all military service members that have died while serving our country. Our heroes that gave their lives for our freedom and our way of life will never be forgotten. Their stories need to be told and listened to. We hope that their sacrifice is remembered and honored by  a grateful nation that collectively stops […]

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Commitment is a Key Ingredient for Mesothelioma Treatment

Commitment is a Key Ingredient for Mesothelioma Treatment

Having been involved with the mesothelioma community for many years, one of the defining qualities of this community is the commitment of the team. The team the patients and their families meet and the ones they never meet. Researchers have committed themselves and their careers to finding treatments for this highly complex disease for decades. What makes a researcher continue to dedicate themselves to this challenge? Progress comes slowly and not without setbacks. Often one of the answers we receive is the stories of the patients and their families.  The passion that clinicians have for the patients affected by this […]

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Where Can Mesothelioma Patients Find Hope?

Where Can Mesothelioma Patients Find Hope?

With the state of the world right now, it is hard to maintain a hopeful outlook. Is there a place for hope? From the larger version of what is going on in the world’s stage, to the very personal journeys we are all on, is hope enough or even possible with the current world events? It is hard not to despair against the overwhelming odds and events that are going on. Despair being the opposite of hope. When diagnosed with a life threatening cancer, or any time we pause to reflect on our lives, we review our wishes, our hopes, […]

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Caregivers of Mesothelioma Patients

Amanda

It is important for mesothelioma patients to reach out for help. It doesn’t mean you are weak, in fact, it can make you stronger. This disease is challenging and leaning on others will help ease your journey.

Amanda became a caregiver for her father after he was diagnosed with mesothelioma. She provides insight into how caregivers can make a difference for those battling mesothelioma. Follow on Twitter.

Jennifer

Watching my father’s journey with mesothelioma has made me realize that you need to cherish every moment that God blesses you with. Love with your whole heart, give with all of your being, and never lose sight of your faith.

Jennifer wrote about life for her family as her father, Don Smitley, battled mesothelioma. Mr. Smitley passed away in 10/2013 and now Jennifer writes with a different perspective, helping those with mesothelioma.

Recent Articles

November is National Family Caregivers Month

It cannot be emphasized enough how important a role family caregivers can play in helping others maintain their optimum health. Being diagnosed with Malignant Mesothelioma, a rare serious cancer affects the patient as well as the family and their loved ones. As with most diseases, often there is one person that ends up being the primary caretaker. This role is often one that the person did not plan on or is prepared for. The people that are affected by this disease can be anyone. The caregiver can be a family member, a son, a daughter, a husband, a wife, a […]

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Mesothelioma Community Recognizes November as National Family Caregivers Month

Mesothelioma Community Recognizes November as National Family Caregivers Month

November is recognized as National Family Caregivers Month. First recognized in November 2013, by President Obama, the purpose of this month is to raise awareness for family  caregivers and to improve their overall lives and well being.  Over the course of life, chances are that we all will be caregivers at some point for a parent, sibling, loved one, partner, neighbor, or friend. It is not something that we plan on or prepare for, it usually just happens. Family caregivers come in all ages, sexes, shapes. They are as varied as all of us. Each one does what works for […]

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November is National Family Caregivers Month

November is National Family Caregivers Month

October was Health Literacy Month and November is National Family Caregivers Month. Both of these special months highlight the importance of education, support, and understanding when dealing with or caring for a loved one. When faced with a diagnosis of malignant mesothelioma, understanding of the disease and what to look for helps both the patient and the caregiver. The definition of health literacy from the Affordable Care Act of 2010 is “the degree to which an individual has the capacity to obtain, communicate, process, and understand basic health information and services to make health decisions.” There is nothing simple about […]

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Riding the Mesothelioma Roller Coaster

Riding the Mesothelioma Roller Coaster

My family and I have been riding the so-called “mesothelioma roller-coaster” for over six years now. The ups and downs of this disease are never-ending and, even though my father has since passed away, they continue. When my Dad was diagnosed, it was instant confusion followed by anger mixed with sadness, anxiety, and grief.  Upon completion of surgery and chemotherapy, it was relief and happiness.  I remember telling my husband after Dad got a report from the doctor that there was no evidence of disease, that I had thought that I would never be able to truly smile again. During […]

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Family Members Want to Care for Their Loved Ones with Mesothelioma

Family Members Want to Care for Their Loved Ones with Mesothelioma

For many different reasons, sometimes it’s hard to ask for help.  You don’t know who to ask, you don’t want to impose, you’re embarrassed, or you don’t want to admit that you need the assistance.  These can ring true for anyone, but I’ve found it to be quite prevalent in the mesothelioma community. This group is made up of warriors!  It’s a group of strong, resilient, and let’s face it… sometimes stubborn (and that’s not a bad thing!) people who are steadfast in their fight.  They don’t want to make others feel as though they are putting them out, or […]

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Daily Challenges of a
Mesothelioma Warrior

I hope and pray that something will be found to stop the dividing of these unnatural cells soon and this will then put an end to the many deaths we have through mesothelioma.

Jan Egerton of England lost her battle with mesothelioma in January 2014. She endured years of surgery, chemotherapy, radiation and more. Jan also chronicled her journey through her blog, Mesothelioma – Jan’s Journey.

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