Featured News Articles: Page 1 of 6

With the state of the world right now, it is hard to maintain a hopeful outlook. Is there a place for hope?

From the larger version of what is going on in the world’s stage, to the very personal journeys we are all on, is hope enough or even possible with the current world events? It is hard not to despair against the overwhelming odds and events that are going on. Despair being the opposite of hope.

When diagnosed with a life threatening cancer, or any time we pause to reflect on our lives, we review our wishes, our hopes, and what has happened to our lives. Our hopes range the spectrum and are as different as we all are. We hope for a cure for our disease. Hope for no pain. Hope that your loved ones’ pain is eased. Hope that our time left is meaningful. Hope plays a part in any cancer journey. 

A pioneer in Mesothelioma research, Dr. David Sugarbaker, used to say “when hope is in the equation, the odds don’t matter.”

What if despite what you hope for, the outcome is not what you wanted? What do we do when we lose a loved one to cancer?

One person turned their despair into hope and hope for others. In 2009, Greg Chastain lost his mother to cancer. One of the things that he enjoyed doing and his mother enjoyed watching was his performances in community theaters. When his mother died he was appropriately devastated. A week after, he went on with the show he had planned to be in. His theater family was so supportive, he decided to do a one time benefit to raise money for cancer research.

The benefit was such a success, he started Voices for Hope. “We are ordinary people on an extraordinary mission to find a cure for cancer.” Voices of Hope, all volunteer performers whose lives have been affected in some way by cancer, perform and raise money  and donate all of it to cancer research, for the collective good. Research toward a cure. One person turning despair into hope. Hope for a cure for cancer.

Research for malignant mesothelioma has long been supported by individuals who have been affected by this disease. Maybe the cure did not come in their lifetimes, or their loved ones’ lifetime, but maybe it will come in their children’s lifetime. Hope for better outcomes, for the collective good.

To have hope is to want an outcome that makes your life better. We hope that this positive example that one person took with his despair may potentially help to impact  many of us, through successful research to a cure.

As we  all collectively join together, w  hope for peace.

Undergoing treatment for mesothelioma can be a challenge to sustain for the long haul. The mesothelioma team invests in the patient, with their expertise and time. This treatment plan is most successful when the patient is willing to partner with the team as well. For most treatments of illnesses, the best equation is that the team and the patient are invested in whatever it takes to make the best possible outcome for the patient. Usually the relationship between the patient and team is ongoing and long term.

Once the plan is formulated and executed, a plan that could involve radiation, chemotherapy, immunotherapy or surgery or a combination of therapies, and the patient is home managing his care, often the physical and emotional challenges set in.

With improvements in therapies for a growing majority of patients, malignant mesothelioma can become a chronic condition for some. Chronic conditions require attention and balancing.

Living with a chronic condition day to day is challenging. The CDC describes a chronic condition as   conditions that last one year or more and require ongoing medical attention or limit activities of daily living or both. It is also estimated that between 95 and 99 percent of chronic care is managed by the person that has the chronic illness.

Most patients will do anything to get better so that is a great start on the investment. It requires activity, nutrition, and a good mental state. What makes a patient who has a rare disease have a good mental state is a good question. The mind is a huge component of fighting illness, and it helps us move forward and not get caught up in our thoughts.

There are many ways patients can stay positive and engaged. You can commit to making a new habit – research shows that it can take up to 66 days to form a solid habit. Many make a list of activities they would like to perform and monitor their progress. Everyone deals with ups and downs – there will be good days and not good days. Sometimes things seem easy that were difficult the day before.

Researchers have shown that being grateful can have positive effects on your brain and increase happiness. Researchers also suggest writing down a list of things that you appreciate, to remember that much more of what we are grateful for. If you have a diary of things you are grateful for, this will become a tool to reflect upon.

The key to being the best you can be while you continue your living with malignant mesothelioma is self-investment of time in your health for the long term. You are the biggest investment and if you don’t invest in yourself, who will? Basically, it is investing or contributing time to you. The investment can include physical, mental, or spiritual activities.

One investment that you know will return dividends is trying to achieve the best possible outcomes with your health. Make it a habit to live your life to the fullest with malignant mesothelioma for the long haul!

Staying positive and maintaining your overall health to the best of your ability is key for your journey with malignant mesothelioma. This is a difficult time but there are some basic things you can do that will help you. Simply going outside is a positive step. 

Going outside can do so much for your outlook or mental state and your overall health. In the United States, according to the EPA, the average American spends 90 percent of their time indoors. Going outside can boost your mood – no special equipment or membership required, just the great outdoors.   

Another positive benefit of spending time outdoors is an increase in your Vitamin D. Vitamin D is beneficial to your bones, blood cells, and immune system. It can also help with the absorption of calcium and phosphorus. With decreased levels of Vitamin D a person is more likely to get colds and the flu. Also, if a person gets sick with pneumonia with decreased levels of Vitamin D, the outcome can be more serious. Sunlight can keep your serotonin levels up if you go outside as well. This will help raise your energy levels and keep your mood positive.

Just by going outside, there is a chance you may connect with people in your community. Human contact can be important to your mental health. Sometimes being inside we tend to get lost in our own thoughts and this is not always positive. Getting outdoors can distract those thoughts inside your head for even just a few moments. In fact, studies show that time in nature can boost your problem solving skills. If you are feeling frustrated or down, the outside world may change your thinking for even just a short time.

Depending on the weather there may be precautions you should take. Stay well hydrated if the weather is warm. Apply sunscreen, wear a hat, or bug spray if necessary. Also bring a phone in case you need to be in touch with someone, or may need a ride back.

Mesothelioma is a complex disease. Each case is unique, similar to one’s fingerprint. Medical centers continue to push for more knowledge and treatments. Although there are many interventions, ideas, and thoughts on how we treat symptoms, some therapeutic ideas are just basic like going outside. The good news: you don’t need to travel and it costs nothing.