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(noun) The act or process of supporting a cause or proposal

~ Merriam-Webster.com

Anyone who lives with pleural mesothelioma or cares for someone with the rare disease knows that educating the public about the struggles facing mesothelioma sufferers takes continuous effort. In order to get the word out about this incurable disease support is needed from organizations, the government, the medical community and a lot of concerned citizens.

Pleural mesothelioma, a rare, aggressive form of lung cancer caused by past exposure to asbestos, is one of the most difficult cancers to treat and is diagnosed in close to 3,000 Americans each year. With so few diagnosis and patients, it is even more critical to advocate on behalf of all mesothelioma survivors and victims. Research for mesothelioma is desperately needed, and researchers rely on donations from the public to keep their projects funded and moving forward.

The primary goals of advocates of mesothelioma patients are to promote awareness of the disease, honor those dealing with terminal cancers, and to increase support for their families and the mesothelioma community.

How Can You Start Advocating For The Mesothelioma Community?

  • Educate yourself about mesothelioma. If you do not know the basic facts of mesothelioma, it is important that you learn them. Read through the information on Mesothelioma Help and find those key points that ‘speak’ to you, such as mesothelioma is incurable, mesothelioma can strike decades after exposure to asbestos, and the only way to prevent mesothelioma is by not being exposed to the mineral in the first place.
  • Talk about mesothelioma. Tell everyone you meet about the tragedy of mesothelioma. The more you talk about it, the more you will spread awareness of the disease. Passing on information about how mesothelioma impacts patients and their families creates an understanding of the disease and can lead to donations for more research or support of patients undergoing treatments.
  • Don’t downplay the disease. Mesothelioma is a serious cancer and families dealing with the disease face significant medical, financial and emotional challenges. If someone in your family is battling mesothelioma, make sure that when you talk about it you talk about the many issues that you deal with every day.

Advocates

Jennifer GelsickJennifer Gelsick lost her father to mesothelioma and now she is a strong advocate for finding a cure for the horrible disease. Each week Jennifer will write an article covering topics such as why she will always advocate for the mesothelioma community, the importance of advocacy, and tips for helping to raise critical funds for mesothelioma research.
You can contact Jennifer on Facebook.
 
 
 

Mavies NyeRecent News – Mavis Nye of England is a 6.5 year mesothelioma survivor. During her battle she has dedicated every day to fighting for the mesothelioma community. Her efforts are now being recognized by being awarded the prestigious British Citizen Award in the category of “Service to Healthcare.” Mavis will receive the award on January 28 in a ceremony during the “presentation day” at the Palace of Westminster.

MesotheliomaHelp sends a huge congratulations to Mavis and a thank you for her tireless efforts for mesothelioma warriors throughout the world!

Read all about Mavis’s recent advocacy efforts here: Mavis Nye: Survivor, Advocate, Author


After my father’s surgery at NYU Langone, he stayed with my husband and me for about a week before making the final three hour trek home. It was dur ...
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Sometimes, I sit and wonder how many different ways I can discuss the importance of advocacy.  How many ways can I write about how critical it is to ...
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People often ask me, “Why do you keep writing and working for a cure for mesothelioma, even though your Dad is no longer here?” Continuing to work ...
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I have written before about how many wonderful people I have encountered in this community.  These warriors are individuals whom I admire and I am ho ...
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Often, my writings urge the mesothelioma community to fundraise, reach out, and do whatever you can to advocate for this group. In this light, my fami ...
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