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For Patients, Nutrition and Exercise Plays an Important Part in the Mesothelioma Journey

Nutrition and exercise plays an important part in a person’s journey with Malignant Mesothelioma.  Recovering from Mesothelioma treatment can be difficult. Whether it is recovering from chemotherapy, radiation, or surgery it can be challenging regardless of the type of treatment you have experienced. 

Nutrition can play a key role in recovering from your treatment. Choosing foods that are high in protein and fat will offer the most reward. Offering starchy foods or carbohydrates like pasta, bread, potatoes and sources of protein like fish, chicken, meats, nuts, turkey, and cheese are great options. For many, these food choices can be overwhelming and difficult to eat. Breaking down meals to smaller portion sizes and more frequently may be easier. If food is not the best choice, drink high calorie protein drinks.  There are many protein drinks available to suit your needs and taste. We have cared for many people who have undergone surgery or chemotherapy and food is the last thing they can enjoy. 

We encourage patients to weigh themselves weekly to monitor progress. Eating when recovering can be a huge chore for some and can become a daunting task. If possible, try to eat one more thing than you did the day before. 

For many their taste buds have been altered. Many times, we hear that food has a metallic taste when receiving chemotherapy. Just keep trying foods and taking in calories. Along the road to recovery things change. If you are recovering from surgery or chemotherapy the taste buds will change again. Maybe the food that tasted awful a few weeks ago will taste better down the road.

Many medical centers where one receives their care can provide nutritional support with nutritionists. Adequate nutrition to maintain energy, muscle mass and your weight may help with tolerating your treatment better. The American Cancer Society states, proper nutrition during treatment supports your immune system and may lower your risk of infection and help you heal and recover faster.”

Many people attempt to  continue with their exercise regime throughout treatment, and others never had a regime and become engaged in one.  Walking is one of the easiest and accessible forms of exercise. Whatever your choice of exercise is there are many benefits to it while recovering from your treatment with cancer. Exercise can lower your risk of depression, anxiety, improve sleep and reduce the risk of developing other chronic diseases. Many people include stretching and breathing exercises as well.

Healthier lifestyles can result in improvement of quality and length of life for some cancer survivors, according to the National Cancer Institute.   Surround yourself with people who will maintain positivity and cheer you on. The benefits of developing a healthier diet and exercise habits during treatment may carry over into survivorship. According to the National Cancer Institute, research suggests that these healthier behaviors may improve the quality and length of life of some cancer survivors. If you have questions, reach out to your treatment center and see what support is available to you. There are many support systems to help with nutrition. Patients who have journeyed before you with the same issues are often  willing to share what worked for them, when recovering from and living with Mesothelioma.

 

Memorial Day: One-Third of Mesothelioma Victims are Veterans

The end of May is when we stop as a country to remember our fallen soldiers. As the nation pays tribute to those that have sacrificed their lives for our freedom, this Memorial Day has special meaning.

Memorial Day is a day to remember and honor all military service members that have died while serving our country. Our heroes that gave their lives for our freedom and our way of life will never be forgotten. Their stories need to be told and listened to. We hope that their sacrifice is remembered and honored by  a grateful nation that collectively stops and gives thanks, for their ultimate sacrifice. 

This year, for the mesothelioma community, in which one third of the victims of this deadly cancer are veterans, we reflect on the continued toll that serving our country may take on service members decades later. By exposure to a known carcinogen, asbestos, the leading cause of malignant mesothelioma in the service of our country decades earlier, this group of soldiers and their families also end up  sacrificing their lives.

Asbestos is still not banned in the United States. The knowledge that it causes deadly diseases that can kill people has been known for decades. For decades advocates have been working to get the importing of asbestos for use in products banned in the United States with no success.  This year we are closer than ever to finally realizing this common sense ban. The bill to ban asbestos is progressing slowly through the Congress but only after endless work by tireless advocates. Advocates whose family members paid with the price of their lives, a fight that they continue to fight so that you or your family member might not suffer the same preventable fate.

Why in this great country of ours are we not able to agree that what is proven that asbestos kills as does guns? There is no need for asbestos or for certain guns. Banning both will prevent needless tragedies, a great majority of Americans agree with getting that done. Why is it acceptable that senseless killing of children while at school and continued use of a known carcinogen to slowly kill is accepted?

Pray that our leaders will have the courage to come together to protect public safety by supporting a total and complete ban of asbestos and the regulation of guns. All of us deserve no less.

Memorial Day is the traditional start of summer with families getting together and barbecues.  Sometimes the meaning of this holiday can be lost. Take the time to remember those who have gone before us. Say their names, tell their stories. Hold your loved ones tight.

Commitment is a Key Ingredient for Mesothelioma Treatment

Having been involved with the mesothelioma community for many years, one of the defining qualities of this community is the commitment of the team. The team the patients and their families meet and the ones they never meet. Researchers have committed themselves and their careers to finding treatments for this highly complex disease for decades.

What makes a researcher continue to dedicate themselves to this challenge? Progress comes slowly and not without setbacks. Often one of the answers we receive is the stories of the patients and their families. 

The passion that clinicians have for the patients affected by this disease does not waiver. Over the decades, through success and failures, they continue to work tirelessly toward a cure.

Teamwork, collaboration, and sharing have evolved over the years. Research has brought the community closer and benefitted patients. Because the patients are involved in the mesothelioma community, their passion feeds the researchers.

When talking with a researcher, they were excited about how they were taking a study that was done, looking at it with a different approach, and now we’re adding to it. This researcher was excited about the opportunity. A young researcher worked for a couple of years in the lab. Their enthusiasm was palpable.

Another long-term mesothelioma expert spoke passionately about the progress made in their career and how the treatment has been refined. The options for treatment had become specialized. Options that when they started their careers were ideas for Clinical Trials have now been proven and are a regular part of treatment options.

None of this has been easy. The road to progress in treatments of malignant mesothelioma has been long. The scientific process is strict, with results needing to be replicated independently. The science is the steam behind the engine, but the engine is the person.

Recently, while visiting a patient staying in a local hotel, he told me his weekend schedule. I was taken back. He had reconstructive surgery, where his mesothelioma returned. This was not going to interrupt the list of things he wanted to do for him. He was going to an NBA game, and the following day, he would cross the state line to check out a casino. When I told the surgeon on Monday, he could not have been more elated. This kind of approach is why the mesothelioma team does what it does. They want people to live their lives the way they choose to.

Thank you for the years of dedication and perseverance to the many scientists behind the scenes working towards a cure for malignant mesothelioma.

Where Can Mesothelioma Patients Find Hope?

With the state of the world right now, it is hard to maintain a hopeful outlook. Is there a place for hope?

From the larger version of what is going on in the world’s stage, to the very personal journeys we are all on, is hope enough or even possible with the current world events? It is hard not to despair against the overwhelming odds and events that are going on. Despair being the opposite of hope.

When diagnosed with a life threatening cancer, or any time we pause to reflect on our lives, we review our wishes, our hopes, and what has happened to our lives. Our hopes range the spectrum and are as different as we all are. We hope for a cure for our disease. Hope for no pain. Hope that your loved ones’ pain is eased. Hope that our time left is meaningful. Hope plays a part in any cancer journey. 

A pioneer in Mesothelioma research, Dr. David Sugarbaker, used to say “when hope is in the equation, the odds don’t matter.”

What if despite what you hope for, the outcome is not what you wanted? What do we do when we lose a loved one to cancer?

One person turned their despair into hope and hope for others. In 2009, Greg Chastain lost his mother to cancer. One of the things that he enjoyed doing and his mother enjoyed watching was his performances in community theaters. When his mother died he was appropriately devastated. A week after, he went on with the show he had planned to be in. His theater family was so supportive, he decided to do a one time benefit to raise money for cancer research.

The benefit was such a success, he started Voices for Hope. “We are ordinary people on an extraordinary mission to find a cure for cancer.” Voices of Hope, all volunteer performers whose lives have been affected in some way by cancer, perform and raise money  and donate all of it to cancer research, for the collective good. Research toward a cure. One person turning despair into hope. Hope for a cure for cancer.

Research for malignant mesothelioma has long been supported by individuals who have been affected by this disease. Maybe the cure did not come in their lifetimes, or their loved ones’ lifetime, but maybe it will come in their children’s lifetime. Hope for better outcomes, for the collective good.

To have hope is to want an outcome that makes your life better. We hope that this positive example that one person took with his despair may potentially help to impact  many of us, through successful research to a cure.

As we  all collectively join together, w  hope for peace.

Mesothelioma Patients Must Invest in Themselves

Undergoing treatment for mesothelioma can be a challenge to sustain for the long haul. The mesothelioma team invests in the patient, with their expertise and time. This treatment plan is most successful when the patient is willing to partner with the team as well. For most treatments of illnesses, the best equation is that the team and the patient are invested in whatever it takes to make the best possible outcome for the patient. Usually the relationship between the patient and team is ongoing and long term.

Once the plan is formulated and executed, a plan that could involve radiation, chemotherapy, immunotherapy or surgery or a combination of therapies, and the patient is home managing his care, often the physical and emotional challenges set in.

With improvements in therapies for a growing majority of patients, malignant mesothelioma can become a chronic condition for some. Chronic conditions require attention and balancing.

Living with a chronic condition day to day is challenging. The CDC describes a chronic condition as   conditions that last one year or more and require ongoing medical attention or limit activities of daily living or both. It is also estimated that between 95 and 99 percent of chronic care is managed by the person that has the chronic illness.

Most patients will do anything to get better so that is a great start on the investment. It requires activity, nutrition, and a good mental state. What makes a patient who has a rare disease have a good mental state is a good question. The mind is a huge component of fighting illness, and it helps us move forward and not get caught up in our thoughts.

There are many ways patients can stay positive and engaged. You can commit to making a new habit – research shows that it can take up to 66 days to form a solid habit. Many make a list of activities they would like to perform and monitor their progress. Everyone deals with ups and downs – there will be good days and not good days. Sometimes things seem easy that were difficult the day before.

Researchers have shown that being grateful can have positive effects on your brain and increase happiness. Researchers also suggest writing down a list of things that you appreciate, to remember that much more of what we are grateful for. If you have a diary of things you are grateful for, this will become a tool to reflect upon.

The key to being the best you can be while you continue your living with malignant mesothelioma is self-investment of time in your health for the long term. You are the biggest investment and if you don’t invest in yourself, who will? Basically, it is investing or contributing time to you. The investment can include physical, mental, or spiritual activities.

One investment that you know will return dividends is trying to achieve the best possible outcomes with your health. Make it a habit to live your life to the fullest with malignant mesothelioma for the long haul!

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