Month: November 2013

Mesothelioma Invades All Walks of Life

• Nancy Meredith
• Featured News

Once again, mesothelioma has shown that it is a disease that knows no bounds. Last week a famous Hollywood actor, Ed Lauter, and a Pennsylvania man in a local Bluegrass band, Don Smitley, both lost their lives to the rare, asbestos-caused disease. Although from very different backgrounds, the two men spent their last year fighting pleural mesothelioma, that more than likely developed decades after the men were first exposed to the toxic fibers.

Asbestos is a known carcinogen and is proven to cause mesothelioma, lung cancer, asbestosis and other respiratory diseases. Often called “asbestos cancer,” mesothelioma is highly aggressive and is resistant to many cancer treatments. The cancer has an extended latency period with diagnosis anywhere from 15 to 60 years after initial exposure to asbestos. Currently, there is no known cure for the disease, and the average survival time varies from 4 – 18 months after diagnosis.

Lauter, 74, was a character actor who starred in over 200 movies, including The Longest Yard, Cujo and recently, The Artist, during his nearly 50-year career. Lauter starred alongside Hollywood A-listers such as Clint Eastwood, Burt Reynolds, and Tom Cruise. According to his publicist, Edward Lozzi, Lauter became ill in May and died last Wednesday from mesothelioma.

Smitley, 57, whose life with mesothelioma was recounted through his daughter’s eyes in her Faces of Mesothelioma blog, was diagnosed with the cancer in January 2012. Since then he had surgery, chemotherapy and radiation in an effort to halt the growth of the cancer. Smitley enjoyed playing the guitar with his other band members in The Dunbar Boys, taking walks with his dog, Charley, and mostly he enjoyed spending time with his wife, Judy and daughter, Jennifer. Smitley passed away last Tuesday.

Recent Mesothelioma Deaths Break the Mold

According to Linda Reinstein, co-founder and President/CEO of the Asbestos Disease Awareness Organization, 30 Americans die every day from asbestos-related diseases. The primary demographic of mesothelioma patients is men aged 65 and older with a history of work in construction and general industry.

The U.S. Centers for Disease Control and Prevention reports that of the 18,068 deaths attributed to mesothelioma from 1999 – 2005, over four times more men than women died from the disease. Recently, however, mesothelioma has seemingly ignored the statistics and has taken the lives of young women as well.

In June, 37-year-old Janelle Bedel of Indiana, also known as “Wonder Woman,” died from mesothelioma after fighting the disease for six years. Janelle tirelessly worked to raise awareness of the cancer, and supported the Asbestos Disease Awareness Organization and the Mesothelioma Applied Research Foundation.

Also in June, Debbie “Muvmuv” Brewer, 54, of England, lost her battle to pleural mesothelioma. Debbie was also a stalwart advocate for the mesothelioma community, and during her seven-year battle with the disease fought to raise awareness of the dangers of asbestos. Debbie’s father died from an asbestos-related disease just three months before she was diagnosed in 2006.

The tragedy of mesothelioma is that the disease is entirely preventable by eliminating exposure to asbestos. In its report “Malignant Mesothelioma Mortality — United States, 1999–2005,” the CDC notes:

“Although asbestos has been eliminated in the manufacture of many products, it is still being imported (approximately 1,730 metric tons in 2007) and used in the United States in various construction and transportation products.

Ensuring a future decrease in mesothelioma mortality requires meticulous control of exposures to asbestos and other materials that might cause mesothelioma.”

Know more about mesothelioma and how you can deal with it.

Allied Health Professionals, Vital to Mesothelioma Care, Recognized

• Nancy Meredith
• Mesothelioma

This week is National Allied Health Professionals Week. The week brings to light the number of health care professionals, that are distinct from doctors and nurses, who provide for the physical, emotional and spiritual needs of patients.  They also provide support in the prevention, identification and treatment of diseases. Due to the rare and complex nature of mesothelioma, a large number of allied health professionals are needed to provide the appropriate level of support mesothelioma patients require.

Mesothelioma, a rare form of cancer typically affecting the lining of the lungs, is highly aggressive and is resistant to many standard cancer treatments, making it a difficult disease to treat effectively.  Patients often undergo surgical procedures, chemotherapy and radiation, interacting with a variety of allied health professionals during each medical appointment.

Allied health professionals are either technicians (assistants) or therapists/technologists.  Technicians are trained to perform procedures, but are required to work under the supervision of technologists or therapists.  Typically, a technologist gets a certificate with two years or less of higher education, and includes professions such as physical therapy assistants, medical laboratory technicians, radiological technicians and respiratory therapy technicians.

Therapists or technologists are able to evaluate patients, diagnose conditions, develop treatment plans, and understand the rationale behind various treatments.  Therapists or technologists learn to evaluate patients’ responses to therapy and to assist with decisions concerning continued treatment or modification of treatment plans.

Since mesothelioma is such a complex disease, it is important for patients to receive multidisciplinary care from a team of specialists that is not limited to physicians or nurses.  Following is a short list of allied health professionals that may be involved in the care of a mesothelioma patient:

• Respiratory Therapists.  Evaluate, treat and care for patients with breathing or other cardiopulmonary disorders. Highly trained respiratory therapists may assume primary responsibility for all respiratory care, therapeutic treatments and diagnostic procedures.
• Anesthesiologist Assistants.  Under supervision of licensed anesthesiologists (doctors), they operate anesthesia equipment, monitor patients, and assist in providing patient care before, during and after anesthesia.
• Cardiopulmonary Rehabilitation Specialist. Help patients understand and manage their heart or lung disease so they can live longer and do more, primarily by making sure the patient understands his condition and his medical regimen.
• Clinical Laboratory Science professionals. While not directly involved in the care of the patient, a medical technologist can discover the presence or absence of a disease. They typically maintain vital data for identifying and treating mesothelioma and other health conditions.
• Health Information Manager. These professionals manage and maintain all of the medical information vital to providing care to the patient.  The health manager must capture each piece of information that is tracked every time a health care personnel treats the patient including medical history, results of examinations, results of X-rays and laboratory tests, diagnoses, and treatment plans.

According to ExploreHealthCareers.org there are 5 million allied health care providers in the U.S., who work in more than 80 different professions.  Thank you to all Allied Health Professionals! For a list of Allied Health Professionals see ExploreHealthCareers.org .